TARS Awareness Texas

My daughter, Emma Layne, was born with TAR Syndrome. When we were told of her syndrome, like any mother… I turned to the internet looking for answers. Because this syndrome is only found in 1 out of 200,000 there is not a lot of information anywhere. My doctor who would deliver Emma had not seen this before, so we were sent to MFM (Maternal Fetal Medicine), but they too didn’t have much information. We were told that “she may not go full term” in our pregnancy, then it was “she may not live past the age of 2”, so like said, I turned to the internet. Boy, that was even a worst nightmare with all the scary pics and what looked to be outdated information. I want to change that. I want for families who may have a child with TARS to know what could be. And that is… LIFE!

Our mission statement at TARS Awareness Texas is providing some enlightening  information about TAR (thrombocytopenia-absent radius) syndrome from TAR related individuals and families so that others are educated about the rare genetic.